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Patient Engagement Liaison - Clinical

PTC Therapeutics, Inc.
October 3, 2026
Full-time
On-site
United States
Patient Advocacy
Role: Patient Engagement Liaison supporting rare disease communities through education, advocacy, and resource connection. Objectives include fostering relationships with patient advocacy organizations, understanding patient experiences, and assisting with access barriers for marketed products and developmental therapies. Responsibilities encompass community engagement, cross-functional collaboration across medical, communications, legal, and commercial teams, and developing educational programs. Qualifications require a bachelor’s degree in a clinical or scientific discipline, with 5+ years in pharma, biotech, advocacy, or related fields, and experience supporting rare disease populations. Skills include strong communication, relationship building, empathy, compliance knowledge, and proficiency in Microsoft Office and CRM systems. The role demands up to 75% domestic travel, including overnight and weekend commitments, with potential international travel, and field-based work within the continental US. High-value biopharma specifics involve support for rare diseases, with a focus on community engagement, education, and access advocacy, in the context of marketed products and development-stage therapies. This position emphasizes understanding of healthcare and biotech industry dynamics, patient-centric approaches, and compliance with regulatory standards.