Patient Education Liaison, Community - East

Role Summary

The Patient Education Liaison (PEL) is a field-based member of the U.S. Rare Diseases Patient Support Services team. They deliver comprehensive disease and product education, along with personalized support, to patients and families across assigned Rare Disease key accounts. The PEL collaborates with healthcare professionals and cross-functional teams to advise on the patient perspective, ensure patient-informed execution, and communicate KPI data to leadership. Location: Remote/Field.

Responsibilities

• Lead strategy and execute on communication and coordination of both branded and unbranded education encompassing disease, inheritance and product information to patients and families, covering the existing Rare Disease portfolio as well as potential future launches within the assigned territory.
• Evaluate individual patients' educational needs and develop strategic, personalized action plans to deliver relevant, impactful education and support. Ensure that the education provided addresses the specific barriers and concerns of each patient, enhancing their understanding and engagement throughout their journey.
• Lead efforts to facilitate patient education via individual, family, and group meetings, as well as patient organizations and communities, supporting these efforts at the regional and national levels as needed.
• Develop and execute comprehensive patient programming strategies that prioritize patient needs in key accounts, ensuring alignment of the right programs with the appropriate audiences. Tailor initiatives to provide relevant education, support, and resources, optimizing patient engagement and outcomes across all therapeutic areas.
• Execute in-depth disease and product in-services, for all infusion settings (e.g., home and outpatient), ensuring healthcare professionals are knowledgeable prior to treating patients. Coordination with field team members as appropriate.
• Collaborate effectively, building and maintaining strong relationships with the Strategic Account Management cross-functional team (including Commercial, Medical, Marketing, and Case Management) to exchange insights and foster innovative ideas that enhance strategies for key account success. Ensure alignment of patient education initiatives with overall business strategies, driving optimal patient outcomes.
• Analyze and utilize data to inform strategic decisions, prioritize initiatives across disease states and products and meet established KPI’s. Use insights to adjust communication strategies, optimize patient education efforts, and ensure alignment with business goals.
• Consistently and accurately document all pertinent communication details in the CRM database, ensuring timely updates and data integrity to support informed decision-making and cross-functional collaboration.
• Ensure compliance with all relevant company policies, industry standards, and legal and regulatory requirements while fostering collaboration and communication. Compliantly coordinate the exchange of patient-related information with internal and external stakeholders.
• Proactively seek opportunities to improve processes and outcomes, embracing change and innovation to enhance patient support and results.
• Complete administrative reports and projects in a timely fashion.
• Maintain expertise through continuing medical and scientific education including attendance at relevant symposium, scientific workshops, preceptorships, and review of key journals, and successful completion of internal training programs.
• Utilize professional communication to foster strong working relationships with internal and external colleagues.
• Provide caseload coverage outside of assigned territory as needed.

Additional Requirements

• Must be able to travel extensively (50% – 75%)

Qualifications

• Required: Minimum 3-5 years of clinical experience in related field
• Required: Excellent verbal and written communication, mediation, and problem-solving skills, including the ability to connect with patients, caregivers, and providers.
• Required: Excellent verbal and written communication skills to convey complex concepts clearly to both clinical and non-clinical audiences.
• Required: Experience and demonstrated success working in a complex matrix to accomplish goals.
• Required: Strong people skills that demonstrate flexibility, persistence, creativity, empathy, and trust.
• Required: Strong business acumen and strategic thinking skills.
• Preferred: Master of Science degree, or other advanced medical or scientific degree
• Preferred: Genetic counseling certification or nursing registration preferred.
• Preferred: Experience in biotechnology/pharmaceutical industry.
• Preferred: Experience in the following specialties: Genetics、 Neurology/Neuromuscular、 Renal or Hematology/Oncology
• Preferred: Bilingual: Spanish language skills

Education

• Bachelor’s degree in health care/ life sciences (or equivalent)