Patient & Community Educator (PACE)

Role Summary

The Patient & Community Educator (PACE) delivers compliant, non-promotional education to caregivers, patients, residential staff, and healthcare professionals on Prader-Willi syndrome (PWS) and Soleno’s approved therapy. PACEs are a field-based team authorized to provide direct education to patients and caregivers, ensuring accurate, consistent, and accessible information. Reporting to the Director PACE & DRS, PACEs support the commercial strategy by enhancing disease understanding, supporting treatment adherence, and fostering informed engagement across the PWS community. Location: Remote – eligible candidates may be located anywhere in the US within one hour of access to a major airport.

Responsibilities

• Organize and execute patient and caregiver engagement activities in a variety of settings including one-on-one settings, meetings, programs, and conferences of all sizes, and using a variety of communication media.
• Conduct educational in-services for patients, caregivers, healthcare providers, clinic teams, and advocacy organizations
• Support national and regional advocacy events, conferences, and community programs, including those held on evenings or weekends as required.
• Identify and share insights with internal teams and National Director PACE & DRS, from field interactions to inform broader educational strategy.
• Collaborate cross-functionally with Residential Stakeholder Director (DRSs), Rare Disease Specialists (RDS), Regional Access Directors (RADs), Medical, Advocacy, and Marketing to ensure timely support and provide education on VYKAT XR to patients and caregivers.
• Serve as a trusted, accessible resource to the PWS community, by providing educational support, while not directing care or offering medical advice.
• Support Caregiver Advisory Boards, including identification and coordination of appropriate advisors.
• Keep timely documentation within PRM system to capture activities with patients, caregivers, and HCPs.
• Maintain disease-state and product expertise through continuing education and attendance at relevant symposia, conferences, and other educational opportunities.
• Utilize only approved resources and messages to perform function responsibilities.
• Respect the privacy of patients and their caregivers/families and manage all personal information in accordance with all laws, regulations, and policies.
• It is the responsibility of all company employees who receive information pertaining to a possible adverse event (AE) or serious adverse event (SAE) to understand that the appropriate clinical and regulatory personnel must be notified of the event promptly upon receipt regardless of severity.
• MBOs will be established to measure the effectiveness of PACE educational activities on a continual basis and adjusts course where appropriate.
• Maintain documentation requirements for clinical licenses and clinical certification.
• This is not a promotional selling role and is not accountable for delivery of organization sales goals.

Qualifications

• Bachelor’s degree in nursing, dietetics, social work, allied health, and/or clinical background; advanced degree preferred. This role does not involve the practice of direct patient care.
• 5+ years of experience in the pharmaceutical/biotech industry; rare disease experience in specialty products preferred. Experience in the following specialties: Endocrinology, Rare Obesity/Hyperphagia, or Genetics.
• 3+ years’ experience in designing and/or providing patient/caregiver/consumer-oriented education, ideally in rare disease.
• Prior product launch experience preferred.
• Strong understanding of industry legal, regulatory, and compliance landscape.
• Excellent understanding of patient-literacy concepts and ability to communicate complex scientific/medical information in patient-friendly language.
• Fluent in English. Fluent in Spanish, highly preferred.
• Ability to work independently and collaboratively with a diverse cross functional team.
• Excellent communication skills and cultural competency, with ability to engage diverse audiences.
• Self-starter who is highly passionate about rare diseases.

Additional Requirements

• Availability to participate in evening and weekend events as needed, and must be comfortable with frequent, domestic travel (50%+) and have easy access to transportation and airports.