Director, US Patient Advocacy & Professional Engagement

Role Summary

Director, US Patient Advocacy & Professional Engagement. Build and lead US-based patient advocacy and professional society engagements with a focus on chronic rhinosinusitis. Bridge between patients, patient organizations, and Insmed to ensure patient perspectives influence clinical development, patient support initiatives, and disease education.

Responsibilities

• Develop and implement an External Partner engagement strategy aligned to internal business needs and external community needs.
• Partner with Patient Organizations to identify and implement initiatives to empower patient communities to seek optimal and informed care.
• Participate in and support Patient Organization events, workshops, and conferences to elevate awareness and champion patient community engagement.
• Collaborate and co-create with Professional Medical Associations to address evolving medical science related to Insmed‚Äôs therapeutic areas.
• Provide insight into Health Policy and Access & Reimbursement trends to help Patient Organizations understand the access landscape.
• Implement a detailed framework to ensure patient experience is incorporated into all critical business decisions across the asset lifecycle.
• Engage with patient advocacy groups, foundations, and individual patients to align with patient-focused drug development perspectives.
• Establish and maintain strong relationships with key collaborators in the patient community.
• Represent the company in external forums and conferences related to patient advocacy and ensure patient perspective is Internally understood and incorporated into company culture and product development.
• Collaborate with Clinical Development, Medical Affairs, Regulatory, Corporate Communications, Human Resources, Legal, and Compliance to represent Insmed‚Äôs values in initiatives.
• Cultivate a collaborative and supportive team culture to achieve patient-centric goals.

Qualifications

• Bachelor's degree in life sciences, healthcare, public health, or related fields (advanced degree preferred).
• Minimum of 7 years‚Äô experience in patient advocacy/engagement or closely related roles within biotech/pharmaceutical industries.
• Strong understanding of immunological conditions, including chronic rhinosinusitis, with ability to communicate complex scientific concepts to diverse audiences.
• Proven track record in developing and driving strategic projects, including budget leadership.
• Excellent communication and interpersonal skills to engage with patients, advocacy groups, and internal colleagues.
• Experience across multiple therapeutic areas and ability to prioritize appropriately.
• Demonstrated peer leadership and ability to inspire a matrixed team.
• Passion for advocating on behalf of patients and families; knowledge of regulatory and ethical considerations in patient advocacy.
• Experience in early-stage and/or mid-cap sized companies is highly desired; familiarity with regulatory and pharmaceutical promotional review processes.
• Highly organized with strong attention to detail; proficient in Microsoft Office.
• Ability to operate in a dynamic, culturally diverse workplace and align with corporate values: Collaboration, Accountability, Passion, Integrity & Respect.

Skills

• Strategic partnership development
• Stakeholder engagement with patient communities and medical associations
• Health policy and reimbursement landscape knowledge
• Cross-functional collaboration
• Communication and persuasion across diverse audiences
• Project and budget management
• Regulatory and ethical awareness in patient advocacy