Role Summary
The Associate Director, Rare Hematology, US Patient Advocacy collaborates with relevant malignant and non-malignant Hematology and focused rare patient communities to understand unmet needs that inform business strategy, mobilize and empower the patient community and those who care for them to seek the best care, and reduce access barriers.
Responsibilities
- Build and maintain trusted and strategic long-term relationships with patient organizations and communities in relevant malignant and non-malignant Hematology and rare disease areas
- Identify the right patient organizations to drive strategic collaborations and partnerships that help educate and mobilize patients to seek optimal care and elevate the voice of the patient to inform decisionmakers in the patient treatment journey, including HCPs, policymakers and payers
- Execute integrated patient advocacy strategies aligned to critical business and corporate priorities based on deep understanding of the patient/care partner experience and unmet needs
- Ensure patient/care partner insights and implications for launch and growth brands are systematically actioned across corporate affairs and with cross-functional partners
- Stay abreast of key environmental and policy issues impacting the company’s ability to operate and pre-emptively drive initiatives and build relationships to shape the environment
- Monitor and evaluate performance to achieve and maintain best-in-class outcomes, while being fully compliant
Qualifications
- Bachelor’s degree required
- 7+ years of experience in patient advocacy
- Prior experience in ultra-rare disease, oncology and/or hematology
- Commercial launch experience