AD, Patient & Community Liaison - Central US Region

Role: Patient and Community Liaison (PCL) within Novartis' Neuromuscular team, focusing on DMD and SMA communities. Objectives include engaging with patients, caregivers, and advocacy groups to educate on disease progression, treatment options, and product use, while gathering insights to inform market and educational strategies. Responsibilities encompass delivering empathetic education through live events and virtual inquiries, building relationships with advocacy leaders across the US Central region, and ensuring compliance with regulatory standards. The role involves supporting program development through feedback collection, maintaining scientific knowledge, and documenting interactions. Requirements: Bachelor's in healthcare or related field, minimum 5 years' experience in patient education or healthcare support, bilingual in Spanish/English, and ability to travel up to 70%, including weekends. Preferred skills include experience in neuroscience, neuromuscular therapies, gene therapy, and rare diseases. The position is remote, based in the US Central region (PA, OH, WV, KY, TN, MO, AR, MS, AL, FL), with specific travel expectations. The role emphasizes strong communication, interpersonal, and virtual engagement skills, with proficiency in regulatory compliance and collaborative working in matrixed environments.