Sr. Manager, Patient Advocacy

Role Summary

The Senior Manager of Global Patient Advocacy engages patients, families, caregivers, and community advocates throughout the drug development process to understand their challenges and desires and to adapt our efforts accordingly. This role reports to the Senior Director of Global Patient Advocacy and will ensure productive and enduring relationships and communication strategies with patient advocacy organizations and community leaders. The individual will collaborate with internal/external stakeholders to develop and support educational programming and implement communication strategies to share resources, program updates, and other relevant information with the patient community. This position will work with the Patient Advocacy and Medical Affairs teams on multiple development programs at various stages, with a focus on hypoparathyroidism. This is a U.S.-based remote role that will require quarterly, or as needed visits to the San Francisco office.

Responsibilities

• Inspire a patient-first mentality by communicating the “voice of the patient/caregiver” to internal teams and incorporating patient stories, imagery, and unmet needs in company activities and materials
• Act with honesty, integrity, and transparency in collaboration with patients and patient organizations
• Establish and/or further develop and continuously strengthen advocacy relationships with patient advocacy organizations globally through compliant and thoughtful engagement and alignment on company priorities
• Develop and implement patient advocacy communication platforms and activities by collaborating with internal teams that include development, operations, medical, legal, compliance, communications, and commercial
• Support the planning and organization of external meetings and events according to requirements, target audience, and objectives
• Provide logistical and operational support to the grant and sponsorship processes
• Manage financial and reimbursement activities to support meetings with external patient and medical community members (ie, Community Advisory Board and Task Force Meetings)

Qualifications

• Required: Bachelor’s degree (or higher) in a relevant life science field; a post-graduate degree in counseling, social work, genetic counseling, public health, nursing, pharmacy, or life sciences is strongly valued
• Preferred: Experience in rare disease or endocrine disease
• Preferred: A minimum of 2 years in patient advocacy/advocacy relations or similar function in an industry role
• Required: Demonstrated ability to build relationships with patient advocacy organizations, professional associations, or other stakeholders
• Preferred: Ability to communicate in a second language
• Required: Ability to travel up to 30% (often on weekends)

Education

• Bachelor’s degree in a relevant life science field is required; a post-graduate degree in counseling, social work, genetic counseling, public health, nursing, pharmacy, or life sciences is strongly valued

Additional Requirements

• Travel up to 30% (often on weekends) is required