Patient Education Liaison

Role Summary

Reporting to the Executive Director, Patient Engagement Liaisons, the Patient Engagement Liaison (PEL) will serve as the primary point of contact for families during the treatment discovery phase for Elevidys, providing clear, compassionate education to support informed treatment discussions with their care team. The PEL will support patients and caregivers interested in learning about a Duchenne therapy and will provide educational assistance to those considering or undergoing therapy. This field-based role involves supporting the Duchenne community at events, collaborating with patients and families, and serving as a trusted educational resource during the treatment consideration phase. The PEL acts as a bridge between the patient community and Sarepta, ensuring families receive accurate, compassionate, and timely information to support informed decision-making, and will work with internal teams to meet local territory needs.

Responsibilities

• Provide education and ongoing support to patients, caregivers, and the DMD community including Elevidys product information, dosing and administration, and other needed education
• Connect patients and caregivers to relevant support programs, advocacy and community organizations
• Help families navigate available options and understand next steps in their pre-treatment journey
• Be accessible to address the questions of Caregivers and Patients
• Create awareness and educate through local advocacy and programming, including coordinating patient programs and education at conferences
• Respond promptly to patient and caregiver questions and concerns, providing resources to resolve issues, while ensuring compliance with HIPAA and patient privacy policies
• Relay insights from the patient and caregiver community to internal stakeholders to help improve education and support programs

Qualifications

• Required: 3+ years of field-based experience in patient advocacy, patient support, healthcare education, or a related role
• Required: Experience directly supporting patients
• Required: Ability to speak empathetically and connect with patients and families facing challenging medical diagnoses
• Required: Strong communication skills including public speaking and presentation experience
• Required: Ability to explain complex information clearly and compassionately
• Required: Demonstrated ability to effectively collaborate with case managers and account managers, handle difficult patient cases, and respond promptly to patients
• Required: Overnight travel may be required; this position requires significant driving of either a company-provided or personal vehicle as well as prolonged periods of sitting. This position will require approximately 20-50% travel, including some overnights and weekends
• Preferred: Experience in neuromuscular diseases, rare diseases or gene therapy
• Preferred: Bi-lingual English/Spanish preferred
• Preferred: Experience working with patient advocacy organizations

Education

• Bachelor’s degree required

Additional Requirements

• Hybrid work arrangement; on-site at a Sarepta facility in the United States and/or attendance at Company-sponsored in-person events
• Travel up to 50% (including some overnights and weekends)
• Ability to drive a company-provided or personal vehicle
• Prolonged periods of sitting