Patient Education Liaison

Role Summary

The Patient Engagement Liaison (PEL) serves as the primary point of contact for families during the treatment discovery phase for Elevidys, delivering clear, compassionate education to support informed discussions with their care team. This field-based role educates patients and caregivers considering Duchenne Muscular Dystrophy therapies and acts as a trusted educational resource and bridge between the patient community and Sarepta to ensure accurate, timely information. The PEL collaborates with internal teams to meet local territory needs and facilitate patient education and support.

Responsibilities

• Provide education and ongoing support to patients, caregivers, and the DMD community including Elevidys product information, dosing and administration, and other needed education
• Connect patients and caregivers to relevant support programs, advocacy and community organizations
• Help families navigate available options and understand next steps in their pre-treatment journey
• Be accessible to address the questions of Caregivers and Patients
• Create awareness and educate through local advocacy and programming, including coordinating patient programs and education at conferences
• Respond promptly to patient and caregiver questions and concerns, providing resources to resolve issues, while ensuring compliance with HIPAA and patient privacy policies
• Relay insights from the patient and caregiver community to internal stakeholders to help improve education and support programs

Qualifications

• Required: Bachelor’s degree plus 10 years of experience in healthcare, life sciences, social work, public health, or a related field
• Required: 3+ years of field-based experience in patient advocacy, patient support, healthcare education, or a related role
• Required: Experience directly supporting patients
• Required: Ability to speak empathetically and connect with patients and families facing challenging medical diagnoses
• Required: Strong communication skills including public speaking and presentation experience
• Required: Ability to explain complex information clearly and compassionately
• Required: Demonstrated ability to effectively collaborate with case managers and account managers, handle difficult patient cases, and respond promptly to patients

Skills

• Empathetic communication and ability to connect with patients and families facing challenging medical diagnoses
• Strong public speaking and presentation skills
• Ability to explain complex information clearly and compassionately
• Ability to collaborate with case managers and account managers and respond promptly to patients

Education

• Bachelor’s degree in healthcare, life sciences, social work, public health, or a related field

Additional Requirements

• Overnight travel may be required; 20-50% travel, including some overnights and weekends; significant driving of a company-provided or personal vehicle and prolonged periods of sitting are required