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Senior Manager, Patient Advocacy

uniQure
September 02, 2026
Full-time
Remote friendly (United States)
Worldwide
Patient Advocacy
Role: Senior Manager, US Patient Advocacy, responsible for developing and executing strategies to build relationships with patient organizations and communities in the West and Southcentral US. Objectives include elevating patient engagement, informing business strategy through patient insights, and fostering trust and collaboration with rare disease patient groups. Responsibilities encompass leading participation in patient events, developing educational materials, identifying strategic partnerships, and supporting advocacy initiatives that align with corporate priorities. The role involves cross-functional collaboration with Medical Affairs, Market Access, and Commercial teams, and delivering strategic insights to senior leadership. Qualifications: minimum 5 years in a biopharma patient advocacy role, preferably in rare disease, with experience across product lifecycle phases from pre-launch to commercialization. Bachelor’s degree in science, social science, or communications; Master’s preferred. Skills include proven trust-building with patient communities, cross-functional teamwork, public speaking, and knowledge of regulatory and compliance standards. High-value specifics: rare disease focus, patient-centric strategies, engagement across multiple lifecycle phases, and travel requirement of 40%+. The position is based in the US (West/Southcentral) with regional and national engagement responsibilities.