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Patient Education Liaison - Rare Disease (South-Central Region)

Alnylam Pharmaceuticals
Remote friendly (Texas, United States)
United States
$136,000 - $184,000 USD yearly
Patient Advocacy

Role Summary

The Patient Education Liaison (PEL) educates patients, caregivers, families, nurses, medical assistants, office staff, nursing organizations, and community groups on disease state and Alnylam’s RNAi treatments for the Global Rare Business Unit. Using approved materials, the PEL delivers disease-state and treatment education through phone, in-person, and virtual meetings, and collaborates with regional and internal teams to identify barriers to patient access and work to resolve them. This role will cover the South-Central region, with a preferred location in Texas.

Responsibilities

  • Actively collaborates with Field Sales, Patient Services, Medical Affairs, Marketing, Advocacy and other critical internal teams to increase disease-state awareness and early diagnosis
  • Leads regional effort to provide disease-state education, treatment education and support to patients, their families/caregivers, nurses, medical assistants, office staff, nursing organizations, and community groups
  • Maintains disease-state and product expertise through continuing medical education and attendance at relevant symposia, conferences and other educational opportunities
  • Provides comprehensive updates on activity to regional colleagues, ensuring that the regional team appropriately works as one entity to support patients in early diagnosis and access to treatment
  • Offers constructive feedback on existing workplan and proposes innovative service offerings to leadership where opportunities exist
  • Accountable for executing on targeted workplan
  • Completes required work in CRM system to facilitate tracking of critical launch metrics
  • Ensures compliance with all corporate and industry policies per training provided by Alnylam Commercial, Legal, Regulatory and Compliance Officers

Qualifications

  • Genetic rare disease/ultra-rare disease experience
  • 5+ years pharmaceutical/biotech experience in a similar role
  • Required: Experience supporting and providing education to patients, family members, nurses, medical assistants, office staff, nursing organizations, and community groups affected by rare and ultra-rare genetic diseases
  • Strong presentation skills
  • Exceptional interpersonal skills, professional communications, problem-solving, compassion and the ability to navigate difficult conversations
  • Ability to translate scientific/medical information into patient-friendly language
  • Ability to work well and lead within cross-functional groups and in a matrix organization
  • Desire to innovate and work in a fast-paced, energetic environment
  • Self-starter who is highly passionate about rare/ultra-rare disease and Alnylam’s core values:
    • Commitment to People, Innovation, Discovery, Sense of Urgency, Open Culture, and Passion for Excellence.

Education

  • Bachelor of Science in Nursing, Registered Nurse

Additional Requirements

  • Ability to travel up to 75%