Patient Education Liaison

Role Summary

The Patient Education Liaison (PEL) will serve as the primary point of contact for families during the treatment discovery phase for Elevidys, providing clear, compassionate education to support informed treatment discussions with the care team. This field-based role provides educational assistance to patients and caregivers considering or undergoing therapy for Duchenne Muscular Dystrophy (DMD). Reporting to the Executive Director, Patient Engagement Liaisons, the PEL partners with patients, families, and Sarepta internal teams to meet local territory needs.

Responsibilities

• Provide education and ongoing support to patients, caregivers, and the DMD community including Elevidys product information, dosing and administration, and other needed education
• Connect patients and caregivers to relevant support programs, advocacy and community organizations
• Help families navigate available options and understand next steps in their pre-treatment journey
• Be accessible to address the questions of caregivers and patients
• Create awareness and educate through local advocacy and programming, including coordinating patient programs and education at conferences
• Respond promptly to patient and caregiver questions and concerns, providing resources to resolve issues, while ensuring compliance with HIPAA and patient privacy policies
• Relay insights from the patient and caregiver community to internal stakeholders to help improve education and support programs

Qualifications

• Required: Bachelor’s degree plus 10 years of experience in healthcare, life sciences, social work, public health, or a related field
• Required: 3+ years of field-based experience in patient advocacy, patient support, healthcare education, or a related role
• Required: Experience directly supporting patients
• Required: Authorized to work in the United States
• Required: Ability to speak empathetically and connect with patients and families facing challenging medical diagnoses
• Required: Strong communication skills including public speaking and presentation experience
• Required: Ability to explain complex information clearly and compassionately
• Required: Demonstrated ability to effectively collaborate with case managers and account managers, handle difficult patient cases, and respond promptly to patients
• Preferred: Experience in neuromuscular diseases, rare diseases or gene therapy
• Preferred: Bi-lingual English/Spanish
• Preferred: Experience working with patient advocacy organizations

Skills

• Empathetic, patient-centered communication with patients and families
• Public speaking and presentation skills
• Ability to explain complex information clearly and compassionately
• Collaborative approach with case managers and account managers
• HIPAA and patient privacy awareness and compliance

Education

• Bachelor’s degree in healthcare, life sciences, public health, social work, or a related field

Additional Requirements

• Hybrid work arrangement; on-site at a Sarepta facility in the United States and/or attendance at Company-sponsored in-person events as needed
• Approximately 20-50% travel, including some overnights and weekends
• Overnight travel may be required; significant driving of a company-provided or personal vehicle; prolonged periods of sitting as part of the role