Patient Education Liaison

Role Summary

The Patient Engagement Liaison (PEL) serves as the primary point of contact for families during the treatment discovery phase for Elevidys, providing clear, compassionate education to support informed discussions with their care team. This field-based role delivers educational assistance to patients and caregivers considering or undergoing Duchenne therapy, supports the Duchenne community at events, and acts as a trusted resource to help families understand treatment options, available educational resources, and the broader support ecosystem. The PEL collaborates with internal teams to meet local territory needs and serves as a bridge between the patient community and Sarepta. This is a hybrid role requiring on-site work at Sarepta facilities in the United States and occasional in-person events.

Responsibilities

• Provide education and ongoing support to patients, caregivers, and the DMD community including Elevidys product information, dosing and administration, and other needed education
• Connect patients and caregivers to relevant support programs, advocacy and community organizations
• Help families navigate available options and understand next steps in their pre-treatment journey
• Be accessible to address the questions of Caregivers and Patients
• Create awareness and educate through local advocacy and programming, including coordinating patient programs and education at conferences
• Respond promptly to patient and caregiver questions and concerns, providing resources to resolve issues, while ensuring compliance with HIPAA and patient privacy policies
• Relay insights from the patient and caregiver community to internal stakeholders to help improve education and support programs

Education

• Bachelor’s degree (or higher) required

Qualifications

• Required: 3+ years of field-based experience in patient advocacy, patient support, healthcare education, or a related role
• Required: Experience directly supporting patients is required
• Required: Ability to speak empathetically and connect with patients and families facing challenging medical diagnoses
• Required: Strong communication skills including public speaking and presentation experience
• Required: Ability to explain complex information clearly and compassionately
• Required: Demonstrated ability to effectively collaborate with case managers and account managers, handle difficult patient cases, and respond promptly to patients
• Required: Authorization to work in the United States
• Preferred: Experience in neuromuscular diseases, rare diseases or gene therapy
• Preferred: Bi-lingual English/Spanish preferred
• Preferred: Experience working with patient advocacy organizations

Skills

• Empathy and ability to connect with patients and families
• Strong communication and presentation skills
• Ability to explain complex information clearly and compassionately
• Collaborative approach with case managers, account managers, and internal teams
• Ability to respond promptly to patient questions and concerns
• HIPAA/patient privacy compliance awareness

Additional Requirements

• Overnight travel may be required. This position may involve driving a company-provided or personal vehicle and prolonged periods of sitting, with travel expected to be approximately 20–50%, including some overnights and weekends.