Patient Education Liaison

Role Summary

The Patient Engagement Liaison (PEL) serves as the primary point of contact for families during the treatment discovery phase for Elevidys, providing clear, compassionate education to support informed discussions with the care team. This field-based role supports patients and caregivers considering Duchenne therapy and delivers educational assistance throughout the treatment consideration process. The PEL engages with the Duchenne community at events, collaborates with families, and serves as a trusted resource to help families understand the therapy, available resources, and the broader support ecosystem. The PEL acts as a bridge between the patient community and Sarepta, ensuring families receive accurate, timely information and works with internal teams to meet local territory needs.

Responsibilities

• Provide education and ongoing support to patients, caregivers, and the DMD community including Elevidys product information, dosing and administration, and other needed education
• Connect patients and caregivers to relevant support programs, advocacy and community organizations
• Help families navigate available options and understand next steps in their pre-treatment journey
• Be accessible to address the questions of caregivers and patients
• Create awareness and educate through local advocacy and programming, including coordinating patient programs and education at conferences
• Respond promptly to patient and caregiver questions and concerns, providing resources to resolve issues, while ensuring compliance with HIPAA and patient privacy policies
• Relay insights from the patient and caregiver community to internal stakeholders to help improve education and support programs

Qualifications

• Required: Bachelor’s degree plus 10 years of experience in healthcare, life sciences, social work, public health, or a related field
• Required: 3+ years of field-based experience in patient advocacy, patient support, healthcare education, or a related role
• Required: Experience directly supporting patients is required
• Required: Ability to speak empathetically and connect with patients and families facing challenging medical diagnoses
• Required: Strong communication skills including public speaking and presentation experience
• Required: Ability to explain complex information clearly and compassionately
• Required: Demonstrated ability to effectively collaborate with case managers and account managers, handle difficult patient cases, and respond promptly to patients
• Preferred: Experience in neuromuscular diseases, rare diseases or gene therapy
• Preferred: Bi-lingual English/Spanish
• Preferred: Experience working with patient advocacy organizations

Additional Requirements

• Travel and physical demands: Overnight travel may be required; travel approximately 20-50% including some overnights and weekends
• Physical demands: Significant driving of a company-provided or personal vehicle and prolonged periods of sitting