Patient Education Liaison

Role Summary

The Patient Engagement Liaison (PEL) serves as the primary point of contact for families during the treatment discovery phase for Elevidys, providing clear, compassionate education to support informed treatment discussions with their care team. This field-based role supports patients and caregivers considering or undergoing therapy and acts as a trusted educational resource during the treatment consideration phase. The PEL bridges the patient community and Sarepta to ensure families receive accurate, timely information and to help internal teams meet local territory needs. This is a hybrid role, on-site at Sarepta facilities in the United States and/or attending company-sponsored in-person events.

Responsibilities

• Provide education and ongoing support to patients, caregivers, and the DMD community including Elevidys product information, dosing and administration, and other needed education
• Connect patients and caregivers to relevant support programs, advocacy and community organizations
• Help families navigate available options and understand next steps in their pre-treatment journey
• Be accessible to address the questions of Caregivers and Patients
• Create awareness and educate through local advocacy and programming, including coordinating patient programs and education at conferences
• Respond promptly to patient and caregiver questions and concerns, providing resources to resolve issues, while ensuring compliance with HIPAA and patient privacy policies
• Relay insights from the patient and caregiver community to internal stakeholders to help improve education and support programs

Qualifications

• Required: 3+ years of field-based experience in patient advocacy, patient support, healthcare education, or a related role
• Required: Experience directly supporting patients is required
• Required: Ability to speak empathetically and connect with patients and families facing challenging medical diagnoses
• Required: Strong communication skills including public speaking and presentation experience
• Required: Ability to explain complex information clearly and compassionately
• Required: Demonstrated ability to effectively collaborate with case managers and account managers, handle difficult patient cases, and respond promptly to patients
• Preferred: Experience in neuromuscular diseases, rare diseases or gene therapy
• Preferred: Bi-lingual English/Spanish preferred
• Preferred: Experience working with patient advocacy organizations

Skills

• Empathy and ability to connect with patients and families facing challenging medical diagnoses
• Strong communication skills including public speaking and presentation experience
• Ability to explain complex information clearly and compassionately
• Demonstrated collaboration with case managers and account managers, handling difficult patient cases and responding promptly to patients
• Ability to educate patients and caregivers and provide ongoing education and support

Education

• Required: Bachelor’s degree plus 10 years of experience in healthcare, life sciences, social work, public health, or a related field

Additional Requirements

• Overnight travel may be required. This role involves significant driving of either a company-provided or personal vehicle and prolonged periods of sitting, with approximately 20–50% travel, including some overnights and weekends.