Patient & Community Educator (PACE)- New England
Soleno Therapeutics, Inc.
4 days ago
Remote
United States
Patient Advocacy
Summary
The Patient & Community Educator (PACE) delivers compliant, non-promotional education to caregivers, patients, residential staff, and healthcare professionals on Prader-Willi syndrome (PWS) and Soleno’s approved therapy. PACEs provide direct, accurate, consistent education. Reporting to the Director PACE & DRS.
Responsibilities
- Organize and execute patient/caregiver engagement activities (1:1, meetings, programs, conferences) using various communication media.
- Conduct educational in-services for patients, caregivers, healthcare providers, clinic teams, and advocacy organizations.
- Support national/regional advocacy events, conferences, and community programs (including evenings/weekends as needed).
- Share field insights with internal teams and the National Director to inform educational strategy.
- Collaborate cross-functionally (Residential Stakeholder Directors, RDS, RADs, Medical, Advocacy, Marketing) to provide education on VYKAT XR.
- Serve as a trusted resource (provide education only; not direct care or medical advice).
- Support Caregiver Advisory Boards (identify and coordinate advisors).
- Maintain timely documentation in PRM.
- Maintain disease-state/product expertise via continuing education and relevant conferences.
- Use only approved resources/messages; respect privacy and comply with privacy laws/policies.
- Understand adverse event reporting expectations and notify appropriate clinical/regulatory personnel promptly.
- Maintain clinical license/certification documentation.
Qualifications
- Bachelor’s degree in nursing, dietetics, social work, allied health, and/or clinical background; advanced degree preferred. No direct patient care.
- 5+ years in pharma/biotech; rare disease specialty products preferred (Endocrinology, Rare Obesity/Hyperphagia, or Genetics).
- 3+ years designing/providing patient/caregiver/consumer education (ideally rare disease).
- Prior product launch experience preferred.
- Strong legal/regulatory/compliance knowledge.
- Excellent patient-literacy communication; English fluency; Spanish highly preferred.
- Ability to work independently and with diverse cross-functional teams.
- Excellent communication/cultural competency; self-starter passionate about rare disease.
- Full-time; evenings/weekends as needed; frequent domestic travel (50%+). Must have access to transportation/airports; comply with outside employment/conflict policies.
Salary Range: $195,000–$220,000.
The Patient & Community Educator (PACE) delivers compliant, non-promotional education to caregivers, patients, residential staff, and healthcare professionals on Prader-Willi syndrome (PWS) and Soleno’s approved therapy. PACEs provide direct, accurate, consistent education. Reporting to the Director PACE & DRS.
Responsibilities
- Organize and execute patient/caregiver engagement activities (1:1, meetings, programs, conferences) using various communication media.
- Conduct educational in-services for patients, caregivers, healthcare providers, clinic teams, and advocacy organizations.
- Support national/regional advocacy events, conferences, and community programs (including evenings/weekends as needed).
- Share field insights with internal teams and the National Director to inform educational strategy.
- Collaborate cross-functionally (Residential Stakeholder Directors, RDS, RADs, Medical, Advocacy, Marketing) to provide education on VYKAT XR.
- Serve as a trusted resource (provide education only; not direct care or medical advice).
- Support Caregiver Advisory Boards (identify and coordinate advisors).
- Maintain timely documentation in PRM.
- Maintain disease-state/product expertise via continuing education and relevant conferences.
- Use only approved resources/messages; respect privacy and comply with privacy laws/policies.
- Understand adverse event reporting expectations and notify appropriate clinical/regulatory personnel promptly.
- Maintain clinical license/certification documentation.
Qualifications
- Bachelor’s degree in nursing, dietetics, social work, allied health, and/or clinical background; advanced degree preferred. No direct patient care.
- 5+ years in pharma/biotech; rare disease specialty products preferred (Endocrinology, Rare Obesity/Hyperphagia, or Genetics).
- 3+ years designing/providing patient/caregiver/consumer education (ideally rare disease).
- Prior product launch experience preferred.
- Strong legal/regulatory/compliance knowledge.
- Excellent patient-literacy communication; English fluency; Spanish highly preferred.
- Ability to work independently and with diverse cross-functional teams.
- Excellent communication/cultural competency; self-starter passionate about rare disease.
- Full-time; evenings/weekends as needed; frequent domestic travel (50%+). Must have access to transportation/airports; comply with outside employment/conflict policies.
Salary Range: $195,000–$220,000.