Executive Director, State Government Affairs

Role: Executive Director, State Government Affairs at Stoke Therapeutics, leading state-level policy strategies to support access to RNA medicines for severe genetic diseases like Dravet syndrome. Responsibilities: develop and execute comprehensive state advocacy plans; monitor and influence legislation, regulation, Medicaid, and insurance policies affecting rare diseases; shape Medicaid and pediatric rare disease policies; build relationships with policymakers, patient groups, and stakeholders; manage lobbying campaigns, external consultants, and compliance; coordinate federal and state engagement. Requirements: bachelor's degree (advanced preferred); 12+ years in government affairs, public policy, or healthcare policy, with significant state experience; knowledge of Medicaid, managed care, insurance, and rare disease access; proven success in multistate legislative and regulatory strategies; established relationships with policymakers and advocacy groups; excellent communication, collaboration, and strategic skills; willingness to travel up to 40%. High-Value: rare disease, pediatric neurology, genetic testing, Medicaid, policy advocacy, biotech/pharma experience. Work setup: hybrid role based in Bedford, MA, relocating to Waltham, MA, with 30-40% travel.