Duchenne Nurse Educator (Specialty)

Role Summary

The Duchenne Nurse Educator (DNE) works in a highly visible, dedicated team environment. The bilingual (English/Spanish) speaking DNE will support health care providers (HCPs), patients, and caregivers through education on Duchenne Muscular Dystrophy (DMD), the infusion process of our approved therapies, and Sarepta patient support programs. This role develops relationships with HCP’s, patients, and caregivers to support both the HCP’s and the families through their journey on therapy. The DNE also collaborates closely with their cross functional partners to ensure ongoing compliance with therapy. This position will cover Southern California, Arizona, New Mexico, Colorado, Wyoming and Hawaii.

Responsibilities

• The bilingual (English/Spanish) speaking DNE will educate providers, infusion nurses, patients, and caregivers on Sarepta's approved therapies for DMD and the infusion process.
• Serve as recognized expert on DMD education (Genotype, deletions, disease process, etc.).
• Stay current on the DMD environment.
• Collaborate with internal cross functional partners and external partners to ensure ongoing support to HCP’s patients, and families.
• Present to audiences compliantly.
• Conduct Programs for disease state awareness.
• Assist to improve infusion experience for DMD patients by providing ongoing support to the infusion nurses and sharing best practices.
• Work with SareptAssist team and specialty pharmacy to ensure smooth transition from infusion center to home infusion for PMO therapies.
• Support to patients and families as requested by case manager or health care provider.
• Attend advocacy meetings and represent Sarepta at industry conferences.
• Travel to training meetings, medical offices, and home health agencies, as necessary.
• Other related duties as required.
• Special projects including triage nursing support:
• Triage telephone calls from patient care teams requiring medical guidance post gene therapy treatment during rotating 24-hour on-call shifts.
• Intake and interpret different nuances of medical information to triage calls appropriately.
• Communicates and acts as a liaison between patient’s care teams and an experienced physician in a confidential manner.
• Documents calls according to established guidelines (PV reporting).
• Directs the patient care team to the proper Customer Service Center (e.g., Medical information, SareptAssist) based on the topic of the call. Requires on call coverage to provide day, night, and weekend coverage.

Qualifications

• Required: Registered Nurse with a bachelor’s degree (BSN/BS/BA) from an accredited school.
• Required: Bilingual (English/Spanish) ability to communicate effectively in both languages.
• Required: Valid driver’s license and in good standing.
• Preferred: At least 5 years of relevant experience; Infusion, Neuromuscular, Pediatric Neurology, or other specialty experience.
• Preferred: 2 or more years’ experience in the pharmaceutical/biotech industry.
• Preferred: Highly interested in educating people on the disease state of Duchenne and working with health care professionals to support patients and families.
• Skills: Exceptional presentation, verbal, and written communication; ability to present in group and individual settings, live and virtually; strong teamwork and cross-functional collaboration; empathetic, friendly, and relatable communication.
• Comfortable speaking with patients/families; willingness to work in a demanding team environment; commitment to continuous learning.

Education

• Bachelor's degree in Nursing (BSN) or equivalent from an accredited school.

Additional Requirements

• Requires rotating on-call coverage 24 hours/7 days per week.
• Ability to travel, including ground and air transportation, up to 60% within assigned territory; travel to meetings, training, and other programs as necessary.