Duchenne Nurse Educator (Specialty)

Role Summary

The Duchenne Nurse Educator (DNE) educates health care providers, patients, and caregivers about Duchenne Muscular Dystrophy and Sarepta therapies, including the infusion process and Sarepta patient support programs. The DNE builds relationships with HCPs, patients, and families to support their journey on therapy, and collaborates with cross-functional partners to ensure ongoing therapy compliance. The role covers a multi-state territory including Washington, Oregon, Northern California, Utah, Montana, Idaho, Wyoming, and Alaska, and requires bilingual (English/Spanish) communication and travel as needed.

Responsibilities

• The bilingual (English/Spanish) speaking DNE will educate providers, infusion nurses, patients, and caregivers on Sarepta’s approved therapies for DMD and the infusion process.
• Serve as recognized expert on DMD education (Genotype, deletions, disease process, etc.).
• Stay current on the DMD environment.
• Collaborate with internal cross-functional partners and external partners to ensure ongoing support to HCPs, patients, and families.
• Present to audiences compliantly.
• Conduct programs for disease-state awareness.
• Assist to improve infusion experience for DMD patients by providing ongoing support to the infusion nurses and sharing best practices.
• Work with SareptAssist team and specialty pharmacy to ensure smooth transition from infusion center to home infusion for PMO therapies.
• Support patients and families as requested by case manager or health care provider.
• Attend advocacy meetings and represent Sarepta at industry conferences.
• Travel to training meetings, medical offices, and home health agencies, as necessary.
• Other related duties as required.
• Special projects including triage nursing support: Triage telephone calls from patient care teams requiring medical guidance post gene therapy treatment during rotating 24-hour on-call shifts; intake and interpret medical information to triage calls; liaison between patient care teams and an experienced physician; document calls according to guidelines; direct to appropriate Customer Service Center and ensure coverage for day, night, and weekend shifts.

Qualifications

• Required: At least 5 years of relevant experience.
• Preferred: Infusion, Neuromuscular, Pediatric Neurology, or other specialty experience.
• Required: Bilingual (English/Spanish).
• Preferred: 2+ years’ experience in the pharmaceutical/biotech industry.
• Required: Highly interested in educating people on the disease state of Duchenne and working with health care professionals to support patients and families.
• Required: Exceptional presentation, verbal, and written communication skills.
• Required: Demonstrates team-based skills collaborating with cross-functional partners, both internally and externally.
• Required: Competent and comfortable presenting in group and individual settings, live and virtually, with and without technology.
• Required: Empathetic, friendly, and relatable, with effective communication skills.
• Required: Comfortable speaking with patients/families.
• Required: Willingness to work as part of a team in a demanding environment.
• Required: Embraces continuous learning/seeks knowledge.
• Required: Valid driver’s license and in good standing.
• Required: Rotating on-call coverage 24 hours/7 days per week.
• Required: Ability to travel, up to 60% within assigned territory.

Education

• BSN/BS/BA in Nursing from an accredited school.