Duchenne Nurse Educator (Specialty)

Role Summary

The Duchenne Nurse Educator (DNE) will educate health care providers, patients, and caregivers on Duchenne Muscular Dystrophy (DMD), the infusion process of Sarepta’s approved therapies, and Sarepta patient support programs. The role develops relationships with HCPs, patients, and caregivers to support their journey on therapy and collaborates with cross-functional partners to ensure ongoing therapy compliance. This position covers Southern California, Arizona, New Mexico, Colorado, Wyoming, and Hawaii.

Responsibilities

• The bilingual (English/Spanish) speaking DNE will educate providers, infusion nurses, patients, and caregivers on Sarepta's approved therapies for DMD and the infusion process.
• Serve as recognized expert on DMD education (Genotype, deletions, disease process, etc.)
• Stay current on the DMD environment.
• Collaborate with internal cross functional partners and external partners to ensure ongoing support to HCP‚Äôs patients, and families.
• Present to audiences compliantly.
• Conduct Programs for disease state awareness.
• Assist to improve infusion experience for DMD patients by providing ongoing support to the infusion nurses and sharing best practices.
• Work with SareptAssist team and specialty pharmacy to ensure smooth transition from infusion center to home infusion for PMO therapies.
• Support to patients and families as requested by case manager or health care provider.
• Attend advocacy meetings and represent Sarepta at industry conferences.
• Travel to training meetings, medical offices, and home health agencies, as necessary.
• Other related duties as required.
• Special projects including triage nursing support:
• Triage telephone calls from patient care teams requiring medical guidance post gene therapy treatment during rotating 24-hour on-call shifts.
• Intake and interpret different nuances of medical information to triage calls appropriately.
• Communicates and acts as a liaison between patient‚Äôs care teams and an experienced physician in a confidential manner.
• Documents calls according to established guidelines (PV reporting).
• Directs the patient care team to the proper Customer Service Center (e.g., Medical information, SareptAssist) based on the topic of the call. Requires on call coverage to provide day, night, and weekend coverage.

Qualifications

• Registered Nurse with a bachelor‚Äôs degree (BSN/BS/BA) from an accredited school.
• At least 5 years of relevant experience; Infusion, Neuromuscular, Pediatric Neurology, or other specialty experience preferred.
• Bilingual (English/Spanish) required. Ability to communicate effectively in both English and Spanish supports our efforts to better serve a diverse customer/client/community base.
• Prefer 2 or more years‚Äô experience in the pharmaceutical/biotech industry.
• Highly interested in educating people on the disease state of Duchenne and working with health care professionals to support patients and families.
• Exceptional presentation, verbal, and written communication skills
• Demonstrates team-based skills collaborating with cross functional partners, both internally and externally.
• Competent and comfortable presenting in group and individual settings, live and virtually, with and without technology.
• Empathetic, friendly, and relatable, with effective communication skills.
• Comfortable speaking with patients/families.
• Willingness to work as part of a team in a demanding environment.
• Embraces continuous learning/seeks knowledge.
• Valid driver‚Äôs license and in good standing.
• Requires rotating on call coverage 24 hours/7 days per week.
• Ability to travel, including ground and air transportation, up to 60% within assigned territory is required. Must be able to travel to meetings, training, and other programs, as necessary.

Education

• Registered Nurse with a bachelor‚Äôs degree (BSN/BS/BA) from an accredited school.

Additional Requirements

• Travel up to 60% within assigned territory; rotating on-call coverage required.