Director, Patient Advocacy

Role: The Director, Patient Advocacy, leads strategy development and external partnership initiatives to integrate patient and caregiver insights into Sarepta's research, development, and commercialization efforts for rare disease therapies, primarily in neuromuscular and CNS disorders. Responsibilities include building and maintaining strategic relationships with patient advocacy groups, translating patient insights into actionable business strategies, and advising internal teams on stakeholder engagement. The role ensures compliance with all ethical standards and monitors industry trends to inform organizational priorities. Requirements: Bachelor’s degree in life sciences, public health, or related fields; 12+ years in healthcare, biotech, or pharma with 8+ years in patient advocacy or stakeholder engagement, demonstrating success in strategy, partnership development, and influencing cross-functional teams. Skills include strategic planning, communication, and stakeholder management, with experience working within rare disease communities preferred. High-value specifics: Focus on rare diseases, neuromuscular, and CNS disorders; experience in public affairs, community engagement, and advocacy strategy; willingness to travel 30-40%. Work setup: Hybrid in the U.S. with occasional in-person events.