Advocacy Relations Senior Manager - Rare Disease

Role Summary

Advocacy Relations Senior Manager - Rare Disease. Join Amgen’s mission to serve patients living with serious illnesses. Drive patient advocacy efforts and help shape access, education, and empowerment for IgG4-RD and ANCA Associated Vasculitis within cross-functional teams.

Responsibilities

• Serve as a key contributor to Amgen’s U.S. Advocacy strategy and execution for IgG4-RD Disease and ANCA Associated Vasculitis, including strategic programming, awareness month activations, patient events and national and/or local engagement opportunities with the advocacy community.
• Serve as primary relationship manager to IgG4-RD Disease and ANCA Associated Vasculitis related patient groups, cultivating high-trust, compliant partnerships based on shared goals in awareness, education, and access.
• Collaborate cross-functionally with medical, marketing, government affairs and alliance management, and communication teams to drive insights and amplify patient voices in shaping access and reimbursement strategies.
• Represent Amgen in relevant coalitions and forums to elevate the patient community’s voice and needs.
• Drive high-quality initiatives and shared goals to empower patients to take a more active role in treatment decision-making with their healthcare providers.
• Lead identification and support of patients and caregivers in sharing their experiences, ensuring these stories inform external and internal initiatives.
• Proactively identify emerging trends, issues, and community needs related to rheumatology, gastroenterology and nephrology ecosystems, and formulate timely, collaborative responses.
• Support awareness, education, and empowerment efforts across the patient and caregiver communities.
• Translate patient and caregiver insights into actionable strategies that inform cross-functional decisions, advancing patient-centered approaches across the product lifecycle.
• Create and execute collaboration plans with advocacy groups on mutually aligned goals, including public health and clinical education campaigns.
• Organize patient feedback mechanisms to ensure ongoing alignment with advocacy and overall business priorities.
• Travel up to 40% as needed, to engage in internal meetings, advocacy meetings, and conferences.

Qualifications

• Required: Doctorate degree and 2 years of patient advocacy experience
• Required: Master’s degree and 4 years of patient advocacy experience
• Required: Bachelor’s degree and 6 years of patient advocacy experience
• Required: Associate’s degree and 10 years of patient advocacy experience
• Required: High school diploma / GED and 12 years of patient advocacy experience
• Preferred: Previous experience developing and leading patient advocacy engagement strategies for rare, rheumatic and severe inflammatory conditions
• Preferred: Academic/CRO/pharmaceutical/biotech experience; rare disease experience a plus
• Preferred: Experience building community in an emerging disease state that lacks robust patient support
• Preferred: Contribute to development of the patient advocacy strategic plan aligned with company philosophy on patient advocacy engagement
• Preferred: Experience working with community-based organizations
• Preferred: Experience managing multiple projects, priorities, and internal/external partners
• Preferred: Strong planning, project management, communication, and organizational skills; ability to thrive in a fast-paced environment
• Preferred: Strong collaboration across internal and external partners; team and cross-functional orientation
• Preferred: Self-starter demeanor and strong interpersonal skills

Skills

• Stakeholder engagement
• Program development and management
• Cross-functional collaboration
• Strategic communication
• Health advocacy and patient education
• Public health and clinical education campaign design

Education

• As listed in Basic Qualifications (degrees required).

Additional Requirements

• Travel up to 40% as needed