Patient Education Liaison

Role Summary

Patient Education Liaison (PEL) supporting the U.S. Rare Diseases Patient Support Services team. Delivers comprehensive disease- and product- education with personalized support to patients and families across rare disease states and products, while maintaining strong relationships with healthcare professionals and cross-functional teams to facilitate and optimize patient care.

Responsibilities

• Lead strategy and execute on communication and coordination of both branded and unbranded education encompassing disease, inheritance and product information to patients and families, covering the existing Rare Disease portfolio as well as potential future launches within the assigned territory.
• Evaluate individual patients' educational needs and develop strategic, personalized action plans to deliver relevant, impactful education and support.
• Lead efforts to facilitate patient education via individual, family, and group meetings, as well as patient organizations and communities, supporting these efforts at regional and national levels.
• Develop and execute comprehensive patient programming strategies that prioritize patient needs in key accounts, aligning programs with the appropriate audiences.
• Execute in-depth disease and product in-services for all infusion settings, ensuring healthcare professionals are knowledgeable prior to treating patients.
• Collaborate with the Strategic Account Management cross-functional team to exchange insights and foster ideas that enhance strategies for key account success.
• Analyze data to inform strategic decisions, prioritize initiatives across disease states and products, and meet KPIs.
• Document all pertinent communication details in the CRM with timely updates and data integrity.
• Ensure compliance with policies, standards, and regulatory requirements while coordinating patient information with stakeholders.
• Seek opportunities to improve processes and outcomes, embracing change and innovation.
• Complete administrative reports and projects in a timely fashion.
• Maintain expertise through continuing medical and scientific education and internal training programs.
• Provide caseload coverage outside of assigned territory as needed.
• Must be able to travel extensively (50% – 75%).

Qualifications

• Bachelor’s degree in health care/ life sciences (or equivalent)
• Minimum 3-5 years of clinical experience in related field
• Bilingual: Spanish language
• Excellent verbal and written communication, mediation, and problem-solving skills
• Experience in a complex matrix organization
• Strong people skills with flexibility, persistence, creativity, empathy, and trust
• Strong business acumen and strategic thinking

Preferred Qualifications

• Master of Science or other advanced medical/scientific degree
• Genetic counseling certification or nursing registration preferred
• Experience in biotechnology/pharmaceutical industry
• Experience in Genetics, Neurology/Neuromuscular, Renal or Hematology/Oncology

Region

• Based in TX; may include patients across the Western and Central Divisions of the US.
• Flexibility in working hours including evenings and weekends.