Duchenne Nurse Educator (Specialty)
Sarepta Therapeutics
Full-time
Remote friendly (San Francisco, CA)
United States
$132,000 - $165,000 USD yearly
Medical Affairs
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Role Summary
Duchenne Nurse Educator (Specialty) responsible for educating healthcare providers, patients, and caregivers on Duchenne Muscular Dystrophy (DMD) and Sarepta therapies, supporting infusion processes, and collaborating with cross-functional teams to ensure compliant patient support across assigned territories.
Responsibilities
- Educate providers, infusion nurses, patients, and caregivers on Sarepta’s approved therapies for DMD and the infusion process.
- Serve as a recognized expert on DMD education (genotype, deletions, disease process, etc.) and stay current on the DMD environment.
- Collaborate with internal cross-functional partners and external partners to ensure ongoing support to HCPs, patients, and families.
- Present to audiences compliantly and conduct programs for disease-state awareness.
- Assist to improve infusion experience for DMD patients by providing ongoing support to infusion nurses and sharing best practices.
- Coordinate with SareptAssist team and specialty pharmacy to ensure smooth transition from infusion center to home infusion for PMO therapies.
- Support patients and families as requested by case managers or healthcare providers.
- Attend advocacy meetings and represent Sarepta at industry conferences.
- Travel to training meetings, medical offices, and home health agencies as necessary.
- Perform other related duties as required.
- Special projects including triage nursing support: provide post-gene-therapy medical guidance during rotating 24-hour on-call shifts; intake and interpret medical information; liaison between patient care teams and an experienced physician; document calls per guidelines; direct teams to appropriate service centers; require on-call coverage for day/night/weekend.
Qualifications
- Registered Nurse with a bachelor’s degree (BSN/BS/BA) from an accredited school.
- At least 5 years of relevant experience; infusion, neuromuscular, pediatric neurology, or other specialty experience preferred.
- Bilingual (English/Spanish) required.
- Prefer 2+ years of experience in the pharmaceutical/biotech industry.
- Strong interest in educating about Duchenne and supporting patients and families.
- Exceptional presentation, verbal, and written communication skills.
- Team-based collaboration across internal and external partners.
- Comfort presenting in group and individual settings, live and virtual.
- Empathetic, friendly, and relatable with effective communication.
- Comfortable speaking with patients and families; able to work in a demanding environment.
- Willingness to engage in continuous learning.
- Valid driver’s license and in good standing.
- Willingness to rotate on-call coverage (24 hours/7 days per week).
- Ability to travel up to 60% within the assigned territory by ground and air transportation as required.
Skills
- Exceptional presentation and communication skills
- Ability to collaborate with cross-functional teams
- Strong clinical knowledge of DMD and infusion processes
- Effective triage and medical guidance capabilities on-call
Education
- BSN/BS/BA in Nursing or related field from an accredited school
Additional Requirements
- Requires rotating on-call coverage 24/7
- Travel up to 60% within assigned territory
- Hybrid role; on-site in the United States and occasional in-person events