Role Summary
Duchenne Nurse Educator (Specialty) who educates providers, infusion nurses, patients, and caregivers on Sarepta’s approved therapies for DMD and the infusion process; builds and maintains relationships with HCPs, patients, and families across a defined geographic region; supports cross-functional teams to ensure ongoing therapy compliance; and participates in special projects including nurse triage on a 24-hour on-call basis.
Responsibilities
- Educate providers, infusion nurses, patients, and caregivers on Sarepta’s approved therapies for DMD and the infusion process.
- Serve as a recognized expert on DMD education (genotype, deletions, disease process, etc.) and stay current on the DMD environment.
- Collaborate with internal cross-functional and external partners to support HCPs, patients, and families.
- Present to audiences compliantly and conduct disease state awareness programs.
- Assist to improve infusion experience for DMD patients by providing ongoing support to infusion nurses and sharing best practices.
- Work with SareptAssist and specialty pharmacy to ensure smooth transition from infusion center to home infusion for PMO therapies.
- Support patients and families as requested by case manager or health care provider.
- Attend advocacy meetings and represent Sarepta at industry conferences.
- Travel to training meetings, medical offices, and home health agencies as necessary.
- Other related duties as required.
- Special projects including triage nursing support: handle post-gene-therapy medical guidance calls during on-call shifts; triage calls, liaise with care teams and physician, document calls, and direct to appropriate service centers.
Qualifications
- Registered Nurse with a bachelor’s degree (BSN/BS/BA) from an accredited school.
- At least 5 years of relevant experience; infusion, neuromuscular, pediatric neurology, or other specialty experience preferred.
- Bilingual: English/Spanish required.
- Prefer 2+ years’ experience in the pharmaceutical/biotech industry.
- Strong interest in educating people on Duchenne and collaborating with health care professionals to support patients and families.
- Exceptional presentation, verbal, and written communication skills.
- Team-oriented with ability to collaborate cross-functionally.
- Comfortable presenting in group and individual settings, in person or virtually.
- Empathetic, friendly, relatable communication; comfortable speaking with patients/families.
- Willingness to work in a demanding environment and embrace continuous learning.
- Valid driver’s license in good standing.
- Requires rotating on-call coverage 24/7.
- Ability to travel up to 60% within assigned territory (ground and air) for meetings, training, and programs.
Skills
- Excellent interpersonal and communication skills
- Public speaking and educational program development
- Cross-functional collaboration
- Nursing triage and patient-care coordination
Education
- BSN/BS/BA required; RN licensure
Additional Requirements
- Must be authorized to work in the United States.
- Willingness to travel up to 60% and work hybrid, on-site at Sarepta facilities and/or attend in-person events.