Director, Patient Advocacy (Enzyme Therapies, U.S.)
BioMarin Pharmaceutical Inc.
6 months ago
Remote friendly (San Rafael, CA)
United States
Patient Advocacy
Roles and Responsibilities
- Define, lead, and implement BioMarin’s patient advocacy activities in assigned therapeutic areas and geographies, ensuring patient insights inform key business decisions
- Position BioMarin as a global leader in patient advocacy; represent the company and build trust with advocacy groups
- Develop initiatives to connect patient communities with Business Unit/International teams and advance key priorities
- Build open, transparent relationships with key PAGS; identify opportunities for strong partnerships, including co-created/collaborative programs
- Implement community outreach from preclinical development through commercialization to inform clinical trial design and understand patient need; ensure feedback is delivered to the community
- Coordinate patient advocacy interactions across internal functions (Commercial, R&D, Medical Affairs) to present a unified community vision
- Ensure patient advocacy engagements/activations align with business priorities
- Support the Patient Advocacy Therapeutic Area/Geography Lead and represent Patient Advocacy in cross-functional governance forums
- Serve as a point of contact for patient group inquiries (including grants and sponsorships) with compliant guidance
- Develop strategic patient advocacy plans aligned with other functional areas; invest appropriate resources at the right time
- Manage budget and accurately forecast/adjust spend to align with business priorities
- Support opportunities for employees to understand the lived experiences of patients and families affected by genetically defined conditions
- Travel: approx. 30%
Qualifications
- 10+ years of patient advocacy experience in healthcare/biopharma (rare disease experience preferred)
- Proven patient engagement/advocacy track record with demonstrated impact across preclinical research, clinical trials, and commercial outputs
- Sound judgment; ability to work seamlessly internally and externally
- Ability to influence cross-functional teams and build consensus
- Knowledge of regulations governing patient advocacy and understanding of the regulatory/healthcare environment in the assigned area/geography
- Collaborative working style; BS/BA in science, business, or liberal arts (advanced degree preferred)
Workstyle
- Remote possible; if within 100 miles of San Rafael, CA headquarters, role is hybrid with on-site requirements 2x weekly; preference for San Rafael-based candidate
- Define, lead, and implement BioMarin’s patient advocacy activities in assigned therapeutic areas and geographies, ensuring patient insights inform key business decisions
- Position BioMarin as a global leader in patient advocacy; represent the company and build trust with advocacy groups
- Develop initiatives to connect patient communities with Business Unit/International teams and advance key priorities
- Build open, transparent relationships with key PAGS; identify opportunities for strong partnerships, including co-created/collaborative programs
- Implement community outreach from preclinical development through commercialization to inform clinical trial design and understand patient need; ensure feedback is delivered to the community
- Coordinate patient advocacy interactions across internal functions (Commercial, R&D, Medical Affairs) to present a unified community vision
- Ensure patient advocacy engagements/activations align with business priorities
- Support the Patient Advocacy Therapeutic Area/Geography Lead and represent Patient Advocacy in cross-functional governance forums
- Serve as a point of contact for patient group inquiries (including grants and sponsorships) with compliant guidance
- Develop strategic patient advocacy plans aligned with other functional areas; invest appropriate resources at the right time
- Manage budget and accurately forecast/adjust spend to align with business priorities
- Support opportunities for employees to understand the lived experiences of patients and families affected by genetically defined conditions
- Travel: approx. 30%
Qualifications
- 10+ years of patient advocacy experience in healthcare/biopharma (rare disease experience preferred)
- Proven patient engagement/advocacy track record with demonstrated impact across preclinical research, clinical trials, and commercial outputs
- Sound judgment; ability to work seamlessly internally and externally
- Ability to influence cross-functional teams and build consensus
- Knowledge of regulations governing patient advocacy and understanding of the regulatory/healthcare environment in the assigned area/geography
- Collaborative working style; BS/BA in science, business, or liberal arts (advanced degree preferred)
Workstyle
- Remote possible; if within 100 miles of San Rafael, CA headquarters, role is hybrid with on-site requirements 2x weekly; preference for San Rafael-based candidate