Director, Patient Advocacy

Role Summary

The Director, Global Patient Advocacy will define the company’s patient advocacy priorities and oversee advocacy strategies and collaborations that educate and activate patients. You will manage direct patient advocacy relationships across portfolio disease states and lead advocacy plan execution. The position is based on-site in Boston, MA.

Responsibilities

• Ensure deep understanding of supported disease areas and patient needs to inform work across the organization
• Create and execute a strategic and tactical advocacy plan and corresponding budget
• Successfully engage rare disease advocates, building trust and long-term relationships
• Establish and maintain key relationships with advocacy organizations to drive collaboration and education; share information on company activities with advocacy organizations as appropriate
• Collaborate with internal teams on advocacy issues and support their need for patient engagement and insights
• Develop and manage the advocacy sponsorship budget and process for patient advocacy grant requests
• Attend and represent Zevra at key advocacy meetings
• Identify key strategic company representation and advocacy activities at patient conferences and meetings
• Build a patient centric culture
• Work on site Monday - Thursday

Qualifications

• BS/BA degree in biological sciences, business, marketing or similar field and 10+ years in pharma, biotech industry or patient advocacy
• An established history experience in patient engagement, advocacy, and/or relations including experience in developing communications and educational resources OR
• Demonstrated experience implementing organizational strategy with advocacy groups and outcomes

Skills

• Strategy development for patient advocacy programs
• Relationship building with global advocacy organizations
• Cross-functional collaboration across medical affairs, regulatory, marketing, market access, and corporate communications
• Budget development and management for advocacy activities
• Excellent communication and stakeholder management

Education

• BS/BA degree as specified in Qualifications