Director, Patient Advocacy and Operations
Dyne Therapeutics
June 27, 2026
On-site
Waltham, MA
$155,000 - $200,000 USD yearly
Patient Advocacy
Role Summary
- Director, Patient Advocacy & Operations within Corporate & Patient Affairs (C&PA), focused on strategic partnerships with patient advocacy organizations and day-to-day management of Patient Advocacy and Corporate Affairs operations.
Primary Responsibilities
- Execute patient advocacy strategy aligned with corporate objectives.
- Build relationships with patient leaders, caregivers, and advocacy organizations; inform company programs and priorities.
- Plan and manage Patient Community Advisory Panels/Boards.
- Conduct one-on-one engagements to identify needs, insights, and collaboration opportunities.
- Support clinical trial awareness and recruitment through patient engagement/community initiatives.
- Collaborate with Medical Affairs, Marketing, Market Access/Patient Services, and Corporate Affairs to integrate patient voice into R&D, clinical trial design, and commercialization.
- Represent Dyne at patient advocacy events, conferences, and advisory boards.
- Collect, synthesize, and share patient community insights across teams.
- Identify and coordinate community participants for Dyne-led events.
- Plan and execute conference and PAO engagement activities (including event planning, sessions/materials, symposia, presentations, and on-site execution); travel ~20%.
- Serve as operational lead for Patient Advocacy Grants, Sponsorships & Donations (budget oversight; end-to-end submission, documentation, contracting, and payment workflows).
- Support enterprise-wide events (e.g., advocacy walks) as a Patient Advocacy representative on cross-functional teams.
- Manage patient engagement contracting (compliance and timely execution).
- Lead operational processes for patient advocacy materials through Medical Legal Review (MLR).
Education & Skills Requirements
- Bachelor’s degree in relevant field + 10+ years related experience (social work, genetic counseling, nursing, public health preferred).
- 8+ years patient advocacy experience in biotech/pharma (preferably clinical-stage).
- Proven partnerships with patient advocacy organizations and community leaders.
- Deep understanding of rare diseases and Patient-Focused Drug Development (PFDD).
- Strong communication, diplomacy, cross-functional collaboration; ability to influence without authority.
- Experience managing budgets, teams, and compliance-sensitive partnerships in regulated environments.
- Proven clinical trial awareness/recruitment partnership experience.
- Broad biopharma knowledge and drug development understanding.
- Compassionate, patient-centered mindset; integrity.
- Ability to manage multiple projects, navigate ambiguity, thrive in fast-paced environments.
- Experience with patient advocacy sponsorship contracting; strong operations/project/vendor/budget management.
- Strong organizational skills and attention to detail.
- Spanish fluency is a plus.
Pay Range
- $196,000 - $240,000 USD.
- Director, Patient Advocacy & Operations within Corporate & Patient Affairs (C&PA), focused on strategic partnerships with patient advocacy organizations and day-to-day management of Patient Advocacy and Corporate Affairs operations.
Primary Responsibilities
- Execute patient advocacy strategy aligned with corporate objectives.
- Build relationships with patient leaders, caregivers, and advocacy organizations; inform company programs and priorities.
- Plan and manage Patient Community Advisory Panels/Boards.
- Conduct one-on-one engagements to identify needs, insights, and collaboration opportunities.
- Support clinical trial awareness and recruitment through patient engagement/community initiatives.
- Collaborate with Medical Affairs, Marketing, Market Access/Patient Services, and Corporate Affairs to integrate patient voice into R&D, clinical trial design, and commercialization.
- Represent Dyne at patient advocacy events, conferences, and advisory boards.
- Collect, synthesize, and share patient community insights across teams.
- Identify and coordinate community participants for Dyne-led events.
- Plan and execute conference and PAO engagement activities (including event planning, sessions/materials, symposia, presentations, and on-site execution); travel ~20%.
- Serve as operational lead for Patient Advocacy Grants, Sponsorships & Donations (budget oversight; end-to-end submission, documentation, contracting, and payment workflows).
- Support enterprise-wide events (e.g., advocacy walks) as a Patient Advocacy representative on cross-functional teams.
- Manage patient engagement contracting (compliance and timely execution).
- Lead operational processes for patient advocacy materials through Medical Legal Review (MLR).
Education & Skills Requirements
- Bachelor’s degree in relevant field + 10+ years related experience (social work, genetic counseling, nursing, public health preferred).
- 8+ years patient advocacy experience in biotech/pharma (preferably clinical-stage).
- Proven partnerships with patient advocacy organizations and community leaders.
- Deep understanding of rare diseases and Patient-Focused Drug Development (PFDD).
- Strong communication, diplomacy, cross-functional collaboration; ability to influence without authority.
- Experience managing budgets, teams, and compliance-sensitive partnerships in regulated environments.
- Proven clinical trial awareness/recruitment partnership experience.
- Broad biopharma knowledge and drug development understanding.
- Compassionate, patient-centered mindset; integrity.
- Ability to manage multiple projects, navigate ambiguity, thrive in fast-paced environments.
- Experience with patient advocacy sponsorship contracting; strong operations/project/vendor/budget management.
- Strong organizational skills and attention to detail.
- Spanish fluency is a plus.
Pay Range
- $196,000 - $240,000 USD.