Director, Patient Advocacy

Role Summary

The Director, Global Patient Advocacy will define the company’s patient advocacy priorities and oversee advocacy strategies and collaborations that educate and activate patients. The role manages direct patient advocacy relationships across portfolio disease states and leads advocacy plan execution. The position is based on-site in Boston, MA.

Responsibilities

• Ensure deep understanding of supported disease areas and patient needs to inform our work across the organization
• Create and execute a strategic and tactical advocacy plan and corresponding budget
• Successfully engage rare disease advocates, building trust and long-term relationships
• Establish and maintain key relationships with advocacy organizations to drive initiatives for collaboration and education. Share information on company activities and interests with advocacy organizations as appropriate
• Collaborate with key internal teams (marketing, regulatory, market access, clinical and business development, medical affairs, corporate communications) on advocacy issues and support their need for patient engagement and insights
• Develop and manage the advocacy sponsorship budget and process for patient advocacy grant requests
• Attend and represent Zevra at key advocacy meetings
• Identify key strategic company representation and advocacy activities at patient conferences and meetings
• Build a patient centric culture
• Work on site Monday - Thursday

Qualifications

• BS/BA degree in biological sciences, business, marketing or similar field and 10+ years in pharma, biotech industry or patient advocacy
• An established history experience in patient engagement, advocacy, and/or relations including experience in developing communications and educational resources OR
• Demonstrated experience implementing organizational strategy with advocacy groups and outcomes

Skills

• Relationship building with global patient advocacy organizations
• Strategic planning and budget management for advocacy initiatives
• Stakeholder collaboration across medical affairs, regulatory, marketing, and others
• Effective communication and education resource development

Education

• BS/BA in biological sciences, business, marketing or related field

Additional Requirements

• On-site work requirement: Monday - Thursday in Boston, MA