Director, Global Patient Advocacy
Intellia Therapeutics, Inc.
July 02, 2026
Remote friendly (Cambridge, MA)
United States
Patient Advocacy
Responsibilities:
- Develop and implement a coordinated global patient advocacy strategy for ATTR amyloidosis aligned with corporate goals and patient/caregiver needs.
- Serve as an expert on patient advocacy, providing insights, best practices, and guidance across teams.
- Contribute to a high-performing Patient Advocacy team and promote patient-centered thinking.
- Cultivate enduring relationships with patient organizations to advance program objectives.
- Drive cross-functional community partnership initiatives aligned with program priorities.
- Collaborate with patient communities to generate patient-experience data that shapes clinical practice and access.
- Ensure patient/caregiver insights are systematically actioned across Medical Affairs and with cross-functional partners.
- Advance program priorities through compliant sponsorships, educational grants, and program benefits execution.
- Own the annual budget for patient advocacy initiatives.
- Adhere to internal policies and industry regulations.
- Partner with patient organizations to educate and mobilize patients for optimal care; elevate the patient voice for HCPs, policymakers, and payers.
Qualifications:
- Undergraduate degree required; graduate degree in relevant field (e.g., nursing, pharmacy, genetic counseling, social work, public policy, public health) preferred.
- 5–7+ years in the bio-pharmaceutical environment with 4+ years in rare disease and patient advocacy; Amyloidosis experience highly preferred.
- 5+ years leading/developing teams with success building high-performing functions.
- In-depth healthcare/pharma/biotech industry knowledge; solid understanding of FDA/EMA and related regulations.
- Proven ability to establish and maintain strategic partnerships with advocacy groups, patient leaders, and caregivers.
- Strong budget management and vendor direction.
- Exceptional communication skills; ability to translate scientific information into plain language.
Application instructions:
- Apply on a rolling basis until the position is filled.
- Develop and implement a coordinated global patient advocacy strategy for ATTR amyloidosis aligned with corporate goals and patient/caregiver needs.
- Serve as an expert on patient advocacy, providing insights, best practices, and guidance across teams.
- Contribute to a high-performing Patient Advocacy team and promote patient-centered thinking.
- Cultivate enduring relationships with patient organizations to advance program objectives.
- Drive cross-functional community partnership initiatives aligned with program priorities.
- Collaborate with patient communities to generate patient-experience data that shapes clinical practice and access.
- Ensure patient/caregiver insights are systematically actioned across Medical Affairs and with cross-functional partners.
- Advance program priorities through compliant sponsorships, educational grants, and program benefits execution.
- Own the annual budget for patient advocacy initiatives.
- Adhere to internal policies and industry regulations.
- Partner with patient organizations to educate and mobilize patients for optimal care; elevate the patient voice for HCPs, policymakers, and payers.
Qualifications:
- Undergraduate degree required; graduate degree in relevant field (e.g., nursing, pharmacy, genetic counseling, social work, public policy, public health) preferred.
- 5–7+ years in the bio-pharmaceutical environment with 4+ years in rare disease and patient advocacy; Amyloidosis experience highly preferred.
- 5+ years leading/developing teams with success building high-performing functions.
- In-depth healthcare/pharma/biotech industry knowledge; solid understanding of FDA/EMA and related regulations.
- Proven ability to establish and maintain strategic partnerships with advocacy groups, patient leaders, and caregivers.
- Strong budget management and vendor direction.
- Exceptional communication skills; ability to translate scientific information into plain language.
Application instructions:
- Apply on a rolling basis until the position is filled.